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The Most

Common, Complicated, and Confusing illness in medical history

With no scientifically reliable medical test for diagnosing the ailment, and no recognised method of treatment which is consistently effective, and no known cure.

The History of The Chronic Fatigue Syndrome

Research project on fatigue

The Most Common, Complicated, and Confusing illness in medical history

The chronic fatigue syndrome is the most common illness in medical history and has been particularly common in the Western World since the seventeenth century when it was recognised as being a disorder of sedentary workers which was rare in farm laborers and non existent in primitive tribes people.

Nowadays it is commonly encountered amongst patients in every medical clinic and is well known and recognised by all doctors, but there is no generally accepted blood test or x-ray evidence of the cause, and no officially endorsed reliable way of diagnosing the condition, and no consistently effective treatment, and no known cure.

The condition is so complicated and confusing that there are more than 100 labels for it which vary from century to century, and decade to decade, and year to year, and from county to country, state to state, city to city, university to university, and clinic to clinic, and from one doctor or one type of medical specialist to another in the same clinics, and has often been used as the subject of classroom debates for first year medical students, and sometimes produces heated arguments at medical conferences.

Chronic fatigue was the most common ailment in the nineteenth century when it was called Neurasthenia due to the belief that it was caused by a weakness of the nervous system. That label was the most commonly used diagnosis in medical clinics where the condition came to be regarded as an imaginary, trivial, or psychological disorder. Some researchers thought it was caused by tight corsets which compressed the chest, heart, and lungs. It was therefore known as a women's ailment but it also affected some men, especially those who wore male corsets, which were common at the time.

During the American Civil War it was called DaCosta's Syndrome, and was known to effect soldiers who wore tight waist straps, and marched into battle with heavy fully laden knapsacks at double quick pace for 16 hours at a time in cold wet conditions.

In the early twentieth century when time and motion studies were introduced to improve productivity in coal mines, the condition became common amongst the miners who were required to increase the tonnage of coal that they shoveled each day to achieve the new and gradually increasing average worker requirements. The illness was then called Industrial Fatigue. However, there was no medical test that could confirm the existence of the ailments and that created two problems. Firstly the number of individuals developing the ailment because of the progressively increasing workload was posing a great cost to industry, and secondly healthy workers could start faking the condition to avoid their occupational responsibilities, so industrialists socially engineered the idea that it was a psychological disorder, and in Britain the name of The Industrial Fatigue Board was changed to The Industrial Psychology Board. Thereafter healthy workers refrained from faking the condition to avoid being branded as mental cases, and genuinely fatigued patients had to endure the shame and psychological distress imposed on them by the fraudulent defamation of their characters.

In World War 1 the condition affected soldiers who were exposed to round the clock cannon fire in the trenches of the Western Front, where the constant noise made it difficult for them to sleep for months at a time. It also affected soldiers who were exposed to the shockwaves of exploding bombs, but were not hit by shrapnel, so it became known as Shell shock. The undetectable nature of the condition again posed two problems for army administrators. Firstly the number of shell shock cases was posing a large cost to the war and making it uneconomical, and secondly large numbers of healthy soldiers could start faking the condition to avoid the risk of death in the front line of battles, and then it would become impossible to win the war. The armies therefore started discrediting the idea that the condition was a real physical ailment and reinforced the psychological theories by attributing it to fear, with emphasis on the label of cowardice. Thereafter healthy soldiers would choose to face death in battle rather than fake the fatigue and be branded as cowards, and the genuinely fatigued patients had to endure the shame of the devious defamation. The army chose to conveniently overlook the fact that some soldiers were being granted bravery awards at their bedside while they were being treated in shell shock hospitals. The awards were given to soldiers who demonstrated courage in battle above and beyond the call of duty.

(During the Iraqi War the U.S. planes were reported as carrying bombs which were specifically designed to produce the type of shockwaves that caused shell shock in enemy troops.

When the condition affected factory workers who were accidentally electrocuted at work it was called Industrial Shell shock.

In civilian life scientists observed that most patients with chronic fatigue spoke of intolerably distressing cardiac symptoms during physical exertion so the ailment was called "The Effort Syndrome". However, many of the patients had thin physiques so some researchers believed that it was due to poor physical fitness resulting from a lack of exercise because of a fear of exercise or sport, or laziness. In World War 2 the condition was known to be more common amongst lightly built sedentary workers who were sent off to war without the proper amount of physical training, and they were expected to keep up with the marching pace of solidly built soldiers recruited from farm laboring communities. Their condition was called Battle Fatigue. Prisoners of War who lost more than one third of their body weight due to starvation developed chronic fatigue and many of them were still troubled by abnormal fatigue thirty years later.

Some psychiatrists continued to believe that the absence of blood test or x-ray evidence of disease was an indication that there was nothing physically wrong with the patients so they diagnosed the condition as Anxiety State, and other psychiatrists noted that most of the patients with chronic fatigue were depressed so they called it a Depressive Disorder, but most doctors reported that there were patients in almost every clinic who had the condition but appeared to be as anxiety free and as well adjusted as any of their other patients. When the condition affected a soldier at war some psychiatrists continued to attribute it to the fear of battle and called it Battle or War Neurosis, and if it affected a person at work they attributed it to laziness or psychological stress so they called it an Occupational Neurosis, and if the person claimed workers compensation for the ailment they believed that the motive was subconscious greed so they called it Compensation Neurosis, and they believed that after the workers left their employment or received a large financial payout from an insurance company they would make a rapid recovery. Those psychiatrists did not do proper follow up studies, but many patients were forced to resign without the benefit of workers compensation or other entitlements and spent the remainder of their lives in poverty.

Furthermore by not informing workers of the consequences of continuing to work while in a state of fatigue they were neglecting their responsibility to provide preventive advice, and contributing to the development of the chronic condition, and hence were contributing to economic costs to the patients and society.

(It has been a feature of medical history that obscure illnesses have been prejudically attributed to negative, rather than positive personality traits, such as evilness, sinfulness, laziness, cowardice, or greed.)

After more than 100 years of the condition being popularly attributed to laziness or a fear of exercise, it became widely known to affect Olympic athletes, Sports Champions, Football stars, Marathon runners, and World Record holders, and the new profession of sports physicians attributed it to excessive physical strain without adequate rest breaks, and began calling it The Overtraining Syndrome. For example, if poorly prepared athletes participated in too many marathons in the one year they were likely to develop chronic fatigue. They didn't have sufficient time between marathons to fully recover, so when running each additional marathon they just compounded the fatigue which permanently impaired their fitness capacity until they could no longer compete at the elite level, and in the worst cases could not continue with normal employment or lead normal lives. (i.e. it was caused by overwork amongst athletes who were enthusiastic about exercise). The sports doctors recognised its chronic nature and the fact that it ruined the careers of many top athletes, so they began recommending graduated and regulated physical training programmes as important methods of preventing and treating the problem.

Some observers have noted that overwork can cause chronic fatigue so it could be called The Overwork Syndrome which affected workers who worked too hard for too long. The workers who became fatigued and took rest breaks recovered but those who ignored the symptom of fatigue and kept working became over-exhausted and stayed exhausted.

The condition is also common in pregnancy and in other cases it persists or starts after childbirth when the post-natal fatigue has been called Post-Natal Depression, due to the belief that it is the result of the psychological stresses of motherhood. Some women with chronic fatigue can trace their first experience of fatigue back to a pregnancy which may have occurred twenty years earlier, and that prior to the pregnancy they were fit and healthy and had a lot of energy and played a lot of sport.

Other patients report that they can trace the condition back to a traumatic experience in their past, such as the death of a spouse, or the break up of a relationship.

Throughout history there are many examples of epidemics of chronic fatigue of unknown cause which have occurred amongst localised communities such as an outbreak in Akureyri in Iceland in 1948. The symptoms included headaches, sore throat, muscle pain, spasms, paralysis, tiredness, and emotional instability. This set of symptoms was called Icelandic Disease to identify it's locality, with a medical diagnosis of Myalgic Encephalomyelitis, and it was thought to be due to a contagious viral infection. In some cases the fatigue persisted for weeks or months or even years afterwards, and the duration was related to the extent of the paralysis during the original phase. It has been proposed that the persistence of fatigue was due to a post-viral condition where the virus became dormant or hidden and produced long term strain on the immune system. In 1955 there was an outbreak of the ailment affecting 300 of the male and female staff of the Royal Free Group of hospitals in Great Britain where it became known as The Royal Free Disease.

After a flu epidemic in Tapanui, New Zealand, many patients were left with persistent fatigue which became known as The Tapanui Flu.

In World War 1 60,000 British soldiers returned from the trenches of the Western Front where they were exposed to the cold and wet, poor nutrition, blood, pus, rotting corpses, bed lice, contaminated food, food poisoning, dysentery, and wound infections, and the war was finally brought to an end by the Spanish flu which killed millions of soldiers and civilians and was the most severe influenza epidemic in history. After recovering in hospital from months of dysentery and flu the fatigue persisted and many veterans continued to suffer from fatigue for the remainder of their lives.

There are also many cases where patients who have had chronic fatigue for many years, can trace the onset of their condition back to a viral infection of some sort, such as Glandular Fever. Prior to that infection they were fit and healthy and lead normal lives, and since the infection their lifestyle has been restricted by the fatigue.

Other patients report that they can trace the start of the fatigue back to a period of exposure to farm insecticides, or factory chemicals.

Some patients report that is has been a problem since they were born because they cannot remember a time in their lives when they were not easily fatigued, and others cannot recall any particular starting point or incident, and others say that the condition seemed to start incidiously for no identifiable reason and that it gradually got worse until it affected their sport, and then their social life, and ultimately their employment.

There is evidence of a disorder of blood flow throughout the body so American medical researchers called it Neurocirculatory Asthenia, and Russian researchers called it Vasoregulatory Asthenia.

Apart from the fact that the actual physical or organic cause of this ailment has not yet been found, the other reason for the condition being confusing is that there are probably several different disorders being diagnosed as one. For example, some of the conditions may be sleep disorders (related to tiredness) and some may be exercise disorders (related to physical fatigue), and others may be a combination of sleep and exercise disorder. There may also be several different causes for each type which have the same ultimate affect on the body.

In the nineteenth century the condition was commonly seen in women who wore tight waisted corsets which compressed the chest, heart, and lungs and impaired blood circulation from the feet to the chest and brain.

According to The Posture Theory, poor posture compresses the chest and abdomen, and sedentary work involves repeated or constant leaning toward a desk, and when both of those factors are combined the heart, lungs, and abdomen are being repeatedly compressed, and if that process is continued for many years it can eventually and permanently affect the the blood flow from the feet to the chest and brain, and the regulation of physical responses to exertion, and sleep patterns, which is characteristic of The Chronic Fatigue Syndrome. M.B.

 

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