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Introduction
During my treatment for Non Hodgkins lymphoma
(a form of cancer) I had a stem cell transplant. Prior to this
a CVC tube was inserted into my chest just below my right collarbone
and then secured by stitches. This tube became entangled under
my T-shirt and was difficult to access by nurses and would tend
to drag on the neck line when I rolled over in bed. It became
loose and leaked and then infection followed and it had to be
removed. To help prevent this problem I have designed a C-Shirt
which I will wear if I have to undergo this treatment again.
This type of T-shirt would significantly reduce various risks
associated with the treatment, and would therefore be a cheap
and practical product for other patients to use.
Any company who wishes to manufacture the
C-shirt under licence is invited to contact me via email to banfield@chariot.net.au
Similary, parents and friends of cancer patients who wish to
use the C-shirt for fund raising purposes can also contact me
via the same email address.
The Origin of the Banfield Cancer
Shirt - The C-shirt
In December 2001 I entered hospital to be given a stem cell
transplant and chemotherapy for the treatment of a form of cancer
called Non-Hodgkins Lymphoma.
Before the treatment started I was taken to a clinic where a
surgeon was to insert a tube into my chest. This tube was called
a central venous catheter or CVC. As I laid on a bed a nurse
brought in a package sealed in plastic. When the surgeon unwrapped
it he withdrew a cleaned and sterilised cotton surgical gown
and mask and plastic gloves. He then opened another sealed plastic
bag which covered a surgical tray containing a variety of sterilised
instruments and other items. Sterilised swabs were then used
to clean my chest near my right collar bone and a sterilised
syringe was used to punch a hole in my chest and then a sterilised
tube was fed into an artery under my skin and pushed toward my
heart. After this procedure was completed the tube was stitched
in place with about 6 inches protruding outside of my chest where
it divided into 3 branches which were each capped at the end.
I was instructed to clean the stitched area each day to prevent
infection and that the tubing could then be kept in place for
several months during my hospital stay and at home until I had
recovered from the treatment. I was then taken back to a private
room in the cancer ward.
The reason so much care was taken to prevent infection was because
the stem cell transplant and the chemicals completely destroys
the immune system so any contracted infection can be fatal. The
ward floors and bedding were also thoroughly sterilised and the
air was filtered.
Soon after returning to the ward a nurse entered the room and
put on a surgical gown and mask and gloves and placed a bag of
chemicals on a 6 foot high stand near my bed. A tube from this
bag was fed into a machine which regulated the flow of chemicals
and then the end of the tube from that machine was plugged into
one of the branches of the tube in my chest so that chemicals
started entering my blood stream. The nurse then placed another
tube on the stand and repeated the process so that 2 bags of
fluids were draining into two of the branches of the tube in
my chest. The second tube could later carry other chemicals,
or nutrients as required by the patient. The nutrients were provided
because the chemicals caused nausea and throat ulcers which made
it difficult to eat by mouth. The third branch of the tube in
my chest was left free so that blood samples could be taken daily,
or when required.
Within a few hours of the chemicals being given I became nauseous
and began to vomit impulsively and violently which required me
to jump out of bed and vomit into a bowl on the right side of
my bed, and within a few moments I had sudden diarrhoea which
required me to leap frog over the bed and sit on a commode to
empty my bowels and a few moments later I had to get out of bed
to urinate urgently. These things happened so suddenly that I
tended to get tangled in my tubing and to place strain on the
stitches which were holding it in place in my chest.
The problem was compounded by the fact that I had a thin physique
and it was summer so I generally felt cold in the air-conditioned
wards of the hospital so I wore thermal T-shirts. One was a polo
neck and the other had a broad neck. However I had been advised
to wear a button up shirt so that the nurses could access the
tubing in my chest easily, but I did not have such a shirt with
me.
As a result, whenever I moved in the bed the tubing tended to
drag on the neck of my T-shirt causing strain on the stitches
which held it in my chest. In addition to this, whenever the
nurses came to check my tubing or do a blood test they would
have to reach clumsily into the neck of my T-shirt to find the
tube, and then awkwardly drag the tangled tube out, invariably
pulling on the stitches in my chest.
I was also given antiseptic swabs and instructions on how to
clean around the catheter insertion site to prevent infection,
and that I had to do it myself, rather than have the nurses do
it for me, so that when I left hospital a month later I would
be able to keep the wound clean at home. However, because of
the side-effects of the chemotherapy my fingers seemed to be
slightly numb and not as nimble as usual, and because I was feeling
nauseous and ill and because of the position of the tubing in
my upper chest I found it difficult, and in fact impossible to
bend my neck far enough to look down to see the insertion site
directly. Also my eyesight was not good and I found it difficult
to see the wound in the mirror because the line across my bifocal
lensess was getting in the way, and it was difficult to coordinate
the cleaning process because the mirror image is the opposite
of the wound. Therefore in my clumsy attempts to clean the skin
around the catheter I often felt sharp pain as I knocked the
catheter.
Eventually, on the third day I rolled over in bed and the tube
pulled on the neck of my T-shirt and dragged on my chest causing
it to be sore and within the next few hours I noticed that my
T-shirt was getting wet. This was because the fluid was leaking
out of my chest at the entry site of the tube. A nurse then came
to inspect the tube and noticed that it was leaking, and also
that, as a result, my skin was showing signs of infection so
the tube had to be removed.
A specialist told me that this would make it difficult to provide
me with intra venous nutrients in the future and that this would
significantly reduce the chances of me making a long term recovery
from the cancer.
For various reasons including my poor condition following the
transplant it was not possible to insert another catheter directly
into my chest so several attempts were made to get a different
type of tube, called a picc line, into my chest via my arm but
each time the tube became stuck in the armpit area and had to
be removed. The only alternative was to insert two tubes, called
jelcos into my left wrist and the chemicals were inserted through
them.
These tubes presented a few limitations and problems. For example
it was not possible to deliver nutrients through these tubes
so my only source of nutrition for the next 2 weeks was vitamin
enriched liquid milk mixtures which I forced myself to drink
despite the problem of severe nausea. Also the jelco tubes became
infected more easily and so were routinely removed each second
day and then two new jelco tubes were inserted into my right
wrist and then plugged into the chemical tubes. This change of
tubing occurred every second day for the next month. Also it
was not possible to take blood samples from these tubes so an
injection had to be inserted into my arm at least once a day
for blood tests to be taken. In other words because the one chest
tube had to be removed I had to have 60 additional injections
in the following month, which were all given while I was quite
unwell.
I considered the fact that many other patients would have exactly
the same problems and that I might have been able to prevent
the problem by not wearing the thermal T-shirts and by keeping
myself warm by some other means, and that I could redesign my
own T-shirts to overcome the problem if I had to have similar
treatment in the future.
This T-shirt would be a slight modification of my own open neck
thermal T-shirt with two cuts down each side of the neck for
about 6 inches so that a flap in front would leave the shirt
open with easy uncomplicated and fully visible access to the
tubing in my chest. After the tubing had been inspected or used
for blood tests the flap could be simply replaced and held in
place by moderately secure velcro strips until the next blood
test. If the velcro had moderate strength then any pulling or
strain on the tubing would tend open the flap providing the patient
with advance warning that their was strain on the tubing so that
they could stop rolling in bed before the tube dragged on the
stitching in the chest. By this means thousands of patients around
the world could avoid the months of inconvenience associated
with the removal of the chest tubing, and the success rate from
treatment would improve saving many lives and saving governments
a lot of money in treatment costs.
I call this T-shirt design The C-shirt (The CVC or Cancer Shirt)
and recommend that it be included in the kit which is given to
the surgeon when the tubing is inserted. (The surgeon would get
his gown, mask, and gloves, and the patient would get his C-shirt).
The benefits would far outweigh the very slight cost, and if
this became an accepted idea I presume that I would be entitled
to a small royalty for each C-shirt.
Max Banfield
PS On previous hospital visits I had become cold due to
the hospital air-conditioning, so prior to going on this occasion
I packed two of my thermal T-shirts so that I could keep warm
and so that, when one was being washed each second or third day,
I could wear the other. I also purchased 3 knee length T-shirts
which were labeled as 'one size fits all'.
However I had not had a stem cell transplant or a CVC before
so I was unable to predict or prepare for the treatment and I
am sure that other patients would have the same problem.
I therefore suggest that the CVC kit include two universal sized
C-shirts of moderate warmth characteristics to suit most patients
and the benefits would still far outweigh the costs. M.B.
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