The Pacing Webpage

for the chronic fatigue syndrome

by Max Banfield ©

 

The Eurovision Song Contest

2015 Australian Entry

What are your values

If I wrote the words to a song called PACING. instead of a set of guidelines, and I received $1 each for 300 million copies, then I would be as famous and wealthy as The Rolling Stones. See here

However, people seem to want treatment for free so they can return to health and spend $100 at pop concerts, the movies, or football games???

 

There has been an attempt to convince the public that research into CFS began in 1988, but it actually began centuries earlier and had been called hypochondria because there was no evidence of disease, and hysteria when it affected women, and an anxiety or psychosomatic disorder because of the idea that psychological factors were responsible.

However between 1975 and 1983 I determined the physical basis and treatment methods upon which modern ideas have evolved. See the history, for example, here and here.

 

Introduction

TenFootUnicycle

 

I did this summersault when I was about 17 years old at an annual demonstration of the gymnastics club in front of an audience of over 100 people.

The unicycle was about 9 foot six high, and my feet were about two feet higher when I rotated through the summersault.The ceiling of a 2 story building is visible.

When I was about fourteen years old I saw a boy riding a unicycle down the street so i asked him where he learned to do that. He told me about a local gymnastics club so I joined and learned to ride it, and with practice could eventually ride a six foot high, and then a ten foot high unicycle. (9 foot six to 10 feet from floor to seat).

In the meantime I also experimented with various possibilities and eventually developed ways of riding the small unicycles and then the ten foot high unicycle forwards and backwards, in S-curves through skittles, and then did it while blindfolded.

I then experimented by trying to ride it with only one foot on the peddle, firstly with my right foot, and then my left foot, and then while moving back and forth and rotating 360 degrees.

When I was 25 years old I had problems with my health, including severe fatigue, which was not responding to treatment, so when I found out about a medically based fitness research organisation in North Adelaide I enrolled in one of it's classes.

They had two research cardiologists and their assistants, and a scientific laboratory with all of the latest medical technology.

I began with the idea of gradually running faster and faster each week until I returned to normal health but when I tried it the symptoms became worse, so I went slower and slower until I reached a basic level which I could sustain.

I then trained in my own way, and at my own pace several times per week for about ten months but then I injured my knee and had to stop.

I later began experimenting with different types of exercise and the other complicated aspects of the problem.

I then found that the world's top researchers were not able to get any research data on the effects of twelve weeks of regular exercise because all of their patients were dropping out before the required time.

However they were still using the method of gradually running faster and faster each week whereas I was doing almost the exact opposite and continuing for much longer than 12 weeks.

When I was thirty two years old a friend of mine said that he was a friend of Tony Sedegwick who was the head of the fitness organisation where I had trained, and recommended that I contact him, and when I did he arranged a meeting.

During that meeting he was very enthusiastic about solving that major international research problem, but when he asked his two research staff to test it out they said they were too busy on other projects, so he asked me to organise it myself.

The progress and success of that world first study was reported in local and interstate newspapers between 1982 and 1983.

In the meantime I wrote a research paper about the results and sent it to two medical journals but it wasn't accepted for publication so I put it in my filing cabinet and then left the project.

A few years later I heard a news report about the chronic fatigue syndrome, and radio interviews in which my ideas were being discussed, but they didn't mention my name.

In recent years I have learned that my exercise and related methods of treating the problem have been given the label of Pacing and according to patient surveys it is the most effective method in the world today.

I eventually sent a copy of my 1982/3 research paper to the online version of the British Medical Journal and it was published on the 8th January 2014.

 

References

1. 1982 (August 5th), Beer, Diane, Fitness helps in therapy, The News. p.13.

2. 1983 (August 11th), Beer, Diane, Study lifts fitness levels, The News. p.13.

3. 2013 (Oct.4th), Banfield, Max Allan, Development of the design principles for safely conducting research into chronic fatigue and exercise at the South Australian Institute for Fitness Research and Training in 1982, The British Medical Journal (Online Rapid Responses), BMJ 2013;347:f5731, http://www.bmj.com/content/347/bmj.f5731/rr/665176

4. 2013 (December 16th), Banfield, Max Allan, The Banfield Principles: Some methods of preventing adverse effects when using exercise programs to treat the chronic fatigue syndrome, The British Medical Journal (Online Rapid Responses), BMJ 2013;347:f5731, http://www.bmj.com/content/347/bmj.f5731/rr/677779

5. 2014 (January 8th), Banfield, Max Allan, A 1982-3 research paper on the effects of regular exercise on chronic fatigue, The British Medical Journal (Online Rapid Responses), BMJ 2013;347:f5731, http://www.bmj.com/content/347/bmj.f5731/rr/680738

6. 2014 (January 21st), Banfield, Max Allan,The value of exercise research in the diagnosis, measurement, and treatment of the chronic fatigue syndrome, The British Medical Journal (Online Rapid Responses), BMJ 2013;347:f5731, http://www.bmj.com/content/347/bmj.f5731/rr/683022

7. 2014 (January 26th), Banfield, Max Allan, The origin of exercising within limits in CFS, The British Medical Journal (Online Rapid Responses), BMJ 2013;347:f5731, http://www.bmj.com/content/347/bmj.f5731/rr/683819

8. 2014 (February 2nd), Banfield, Max Allan, Banfield’s Definition of the chronic fatigue syndrome, The British Medical Journal (Online Rapid Responses), BMJ 2013;347:f5731, http://www.bmj.com/content/347/bmj.f5731/rr/684913

Banfield's Pacing fees

Developed for the purpose of thwarting devious and ungrateful copyright thieves

 

My method which I now call Banfield's Pacing is regarded as the best treatment in the world today, for the chronic fatigue syndrome, myalgic encephalomyelitis, systemic exertion intolerance syndrome, and Firbromyalgia.

I am the only person who invented it, and can legally claim it as my intellectual property, and am the only person who knows how to improve it.

I require all honest researchers, doctors, specialists or natural therapists of any sort who uses that method to call me Sir, and if they want to obtain a fee for using it, that they first gain my written permission, and pay me an annual license fee, and a royalty for each and every occasion they use it to help each and every patient.

The average cost to 300 million patients each time is approximately $5, so I expect each and every patient to pay it without complaint, otherwise they don't deserve the benefits of my forty years of research, and won't get it.

Graded Exercise Therapy and PACING for CFS Webpage © Max Banfield

The real origin of the modern methods of treating the chronic fatigue syndrome with exercise are The Banfield Methods which were developed and proven between 1975 and 1983.

For more than 100 years many of the world's top researchers were studying chronic fatigue, and had tried to develop various exercise programs to solve the problem, but they came to the conclusion that patients were not following instructions and were dropping out of their courses because the main problem was more related to such things as the fear of exercise than anything physical.

The world's top authority on the topic was Paul Dudley White, who had been studying the problem for more than 50 years. One of his colleagues was Mandel E. Cohen. This is an extract from a 1974 publication which reports that the patients "would not or could not" train according to the instructions . . .

 

CouldNotorWo

 

I didn't know anything about medicine, or the history of the subject, so when I had the problem in 1975 and my doctors and specialists were unable to explain them, or relieve the symptoms, I decided to try and develop a way of treating it myself.

One of the many things I did was to enrol in a fitness program at a research institute where I developed a method of treatment which I later defined for others to use in a research project which I was asked to organise between 1982 and 1983.

Since then it was possible for anyone to use, and nowadays it is recognised as the best method in the world and has been given the name of pacing.

Most people don't know that I invented the method, and that there has been no significant changes since, although I have improved it considerably myself.

 

 

My comments on the news items

One of the main objectives of my research was to scientifically prove that the chronic fatigue was a physical problem with a physical basis which could, in some cases, be improved by a physical method, namely an appropriately designed exercise program. I achieved all of those objectives.

However, in order to do that I needed to recruit other patients, which was accomplished by a series of newspaper articles.

However, some the articles tended to focus on the previous psychological ideas and examples rather than the actual findings.

Needless to say they were essential for recruiting patients to the project, and for reporting it's progress and success, so I am thankful for that.

Unfortunately, patients who read them nowadays think that I am writing about a different disease, or a mental illness, which I am not.

Essentially, I determined that patients who have persistent or recurring problems with fatigue generally have an abnormally reduced capacity for exercise, and that in order to gain improvement they need to exercise in a very gradual way, rather than the normal way. It is much more complicated than that, which is why people who try to copy me end up getting different, sometimes adverse results.

Adverse effects from the recent PACE trial???

For example, the recent five million dollar, five year pace trial had 51% of patients complaining that they were worse after the training than before. That is not my fault, because I was not consulted for advice on how to do it safely.

In my 1982/3 research project most participants improved, or remained at a very similar level, and no-one complained about getting worse.

See my report on Tom Kindlon's study of the harmful effects of the PACE trials here.

Now in the

British Medical Journal

An extensive list of my other published letters, essays, and books can be seen here

Recently I sent some essays to the British Medical Journal, and twelve have been published including . . .

my 1982/3 research paper here, and, The Banfield Principles, which are based on the set of guidelines used in it here.

The Banfield Principles were published on 16th December 2013, and The 1982/3 research paper was published on on 8th January 2014.

Why I developed exercise methods for treating CFS

and why other researchers copy my methods

In 1975 doctors were unable to relieve my illnesses which had been accumulating for several years, so it became obvious to me that I would have to study them myself.

One reason was that when doctors do research it doesn't matter to them if the disease is cured this year, or next, or in 500, or 1000 years, because they will probably succeed sooner or later, and if they have difficulty solving one problem they can better utilise their time trying to cure another ailment where the solution is easier to determine.

However, I wanted answers in my lifetime, not in centuries into the future.

One of the things I did was to join an exercise program at a fitness research institute, where I was being told to train in the same way as other individuals but that was impossible, so I slowed down and continued at my own rate. I also made many other changes and was able to improve my health, but then I injured my knee and had to stop.

Within the next few years I learned that international researchers were having difficulty getting patients to train for long enough to gain useful information, so when I explained what I had done to the head of that institute, Tony Sedgewick, he asked me to design and organise a project for other patients.

I did that between 1982 and 1983, and the progress and success was widely reported in newspapers throughout Australia where one article stated that it may be a "world first". in fact, it did become the first time it had ever been done on such a scientific basis and with such success.

Late last year, in November 2012, I learned that a London doctor, named Simon Wessely, had been awarded the John Maddox Prize for his research into the chronic fatigue syndrome and exercise, which looked very similar to what I had been doing, so I investigated the timing.

He started in 1987, only four years after I had already solved the main problems, and the research into that ailment began to surge and expand internationally with the U.S. Centers for Disease Control and Prevention introducing the chronic fatigue syndrome to it's official list of ailments, and the media reporting it as a "new" disease.

The supposedly "new" methods developed by Wessely and others have been given the labels of "Graded Exercise Therapy", and "PACING" but the actual details include the basic methods which I used to get patients to train where it hadn't been possible, or at least not reliable before - namely start low, proceed very gradually, and stay within the level that symptoms don't cause problems.

However, they haven't taken all of the details into consideration, so Wessely has received a lot of complaints from patients, and when his colleague, Peter White, completed a five year study of the effects of exercise on 650 patients, called the PACE TRIAL, more than 50% said that they were worse off after the training than when they started.

I have also seen that some patients have copied my methods and found that they are useful, but instead of being grateful to me, they have taken the liberty of pretending that they thought of them. Nevertheless they are still reporting their own "crashes" and "relapses" and countless troubles with the exercise and their illness.

The methods which I developed between 1975 and 1983 were just the beginning, and I have produced much better ways of managing symptoms since then and now have them all under effective control.

When I accused other people of stealing my ideas I expected to get support from honest doctors, researchers, patients and the media, but I am more likely to be told not to make accusations against "supposedly" respectable scientists, or struggling patients, and that if I know more, I should accept the fact that I am just a patient and give the information for free.

I didn't know what to do about that situation until about a month ago, when I decided to set up a fee structure so that before I publish any more ideas on how to fix those problems I require payment in advance.

(Note: The people who copied me think that the problems were simple and the task was easy, but they will soon learn that it isn't).

See also why I object to the people who have stolen my ideas and methods here.

A newspaper report of one of my public talks to the Tea Tree Gully Community Health Service, published on 12-6-1985, and another publication shortly after.

GullyBreezeArticle

 

ClassicFatigueNewsArticle

 

A local Newspaper report about causes and effects of chronic fatigue

Doctors did not understand my ailments, and could not treat them effectively in 1975, so I began studying them to develop my own methods of treatment. During the next ten years I was writing essays to journals, and letters to newspapers, and setting up self help groups, and giving public talks to make doctors and the public more aware of the problems so that future patients would be better off than I was when I started.

On one occasion I gave a talk to about 30 staff of the Tea Tree Gully Community Health Service where I presented my general conclusions of the wide range of aspects involved in cause etc. A summary of that talk was published in a local newspaper called The Gully Breeze on 12-6-1985, a copy of which I have scanned and provided above left. It can be enlarged to make it easier to read.

I had already completed the research project where I had designed an effective method of exercise for patients with chronic fatigue, and scientifically established the physical basis. It was probably within a year of finishing that study that I set up a self help group for such patients, as can be seen in the article above and to the right, where I was the convener of the S.A. Neurasthenia Group. It was published in a small Natural Health magazine, and I present my summary of some of the causes, effects and treatments for the ailment which I called Classic Fatigue.

Another report relating to chronic fatigue causes and effects in 1985

(not everything goes to plan as expected. I remember joking that if plan A doesn't succeed move to plan Z, and then start on the Chineses alphabet).

The reason that I set up the group was because, as far as I was aware none existed at that time, and I had many articles published to bring public awareness to the otherwise neglected ailment so that researchers could investigate it, and patients would have a better knowledge of cause and methods of management.

I expected that the researchers might use various biochemical tests, x-rays, and other laboratory methods to confirm what I was saying. In fact that was what happened, and thought that they would thank me for giving them the necessary information and clues about what to look for. However, I didn't expect them to say that they also thought of the exercise and related energy methods, or that they thought of exercise or oxygen consumption tests, and tilt table tests for diagnosing it, or that they would claim to be the source of my other ideas about cause and effect in order to get massive funding, medical prizes, and a knighthood. I also didn't expect that some people would describe me as a worthless non-notable fringy kook who was just a sports technician, and imply that I merely spent a short time sitting on a fence and watching a few ordinary tired people run around in circles in one small insignificant research project. To make things worse, I also didn't expect other individuals to discredit me by saying that it wasn't reported in the "real" medical literature, or "peer reviewed" medical journals, or to argue that the "evidence" that confirms what I actually did wasn't good enough???

Nevertheless, if you have a look at all of the research which has been done since then, up to and including to this modern day, you can see a wide variety of people who have made such claims.

It is one of the main reasons I will be charging a fee for any more of my discoveries and essays in advance of publication, and not after, when the same sort of individuals will, I assume, see the opportunity of taking the credit for themselves.

Also, if they wish to make claims to doing anything to solve these problems they will need to do something that I haven't already done, instead of just copying me.

Of course, I apologise to any honest people who didn't know what I had been doing, and who feel they have been misjudged by my comments, but I have to defend my intellectual property rights from selfish and unscrupulous individuals who don't give a dam about me.

What CFS patients can do to support me.

Copyright thieves steal my ideas as soon as they can confirm that they are correct, so I have to stop publishing my methods of preventing, relieving, or curing pain and fatigue.

If patients want to support me then they need to do so directly or indirectly, by informing all of their friends that I was the first to develop particular ideas, and the date at which I developed them.

For example, I developed the method of exercise, and related information between 1975 and 1983. See here and here, and here, and here.

That will make it impractical for copyright thieves to claim to be the first because everyone will know immediately that they are liars.

Max Banfield